Exploring the Learning Needs of Individuals With Inflammatory Arthritis From the Perspectives of Patients, Family Members and Friends, and Health Care Providers: Patient Perspectives (Focus Groups)

This study has been completed.

Sponsor:

Collaborator:

Canadian Arthritis Network

Information provided by:

Sunnybrook Health Sciences Centre

ClinicalTrials.gov Identifier:

NCT00832676

First received: January 26, 2009

Last updated: January 6, 2011

Last verified: January 2011

History of Changes

Purpose

Inflammatory arthritis (IA) is a major cause of long-term disability. Due to specialist shortages, failure of primary care providers and individuals to recognize the disease, and lack of awareness of the importance of early intervention, delays to rheumatologic care are common. Peer support models have been used for various health issues and may be one method to assist individuals with early IA to manage their disease and cope with stress. Qualitative research methods (focus groups) will seek out feedback on a peer support approach and explore the learning needs (informational needs, educational preferences) and opinions about emotional and appraisal support of individuals living with IA, from the perspectives of patients. The data will be analyzed and expressed themes (articulated needs and understandings of interviewee context) will guide the future development of a peer support intervention.

Condition
Arthritis

Study Type:	Observational
Official Title:	Exploring the Learning Needs of Individuals With Inflammatory Arthritis From the Perspectives of Patients, Family Members and Friends, and Health Care Providers: Patient Perspectives (Focus Groups)

Further study details as provided by Sunnybrook Health Sciences Centre:

Primary Outcome Measures:

learning needs (informational needs and educational preferences) [ Time Frame: Baseline ] [ Designated as safety issue: No ]

Estimated Enrollment:	24
Study Start Date:	January 2009
Study Completion Date:	December 2009
Primary Completion Date:	December 2009 (Final data collection date for primary outcome measure)

Show Detailed Description

Eligibility

Ages Eligible for Study:	18 Years and older
Genders Eligible for Study:	Both
Accepts Healthy Volunteers:	No
Sampling Method:	Non-Probability Sample

Study Population

Patients with inflammatory arthritis

Criteria

Inclusion Criteria:

Patients for focus groups:
1. Have a diagnosis of IA from a physician;
2. Able to participate in a one to two hour focus group session;
3. 18 years of age or older;
4. English-speaking; and,
5. Able to get to the focus group session.

Contacts and Locations

Please refer to this study by its ClinicalTrials.gov identifier: NCT00832676

Locations

Canada, Ontario
Sunnybrook Health Sciences Centre
Toronto, Ontario, Canada, M4N 3M5

Sponsors and Collaborators

Sunnybrook Health Sciences Centre

Canadian Arthritis Network

Investigators

Principal Investigator:

Mary J Bell, MD, FRCPC

Division of Reumatology

More Information

No publications provided

Responsible Party:	Dr. Mary J. Bell, Sunnybrook Health Sciences Centre
ClinicalTrials.gov Identifier:	NCT00832676 History of Changes
Other Study ID Numbers:	DOCH2 447-2008
Study First Received:	January 26, 2009
Last Updated:	January 6, 2011
Health Authority:	Canada: Ethics Review Committee

Keywords provided by Sunnybrook Health Sciences Centre:

Mixed methods research (qualitative and quantitative)
Peer support
Early inflammatory arthritis
Self-management
Patient education

Additional relevant MeSH terms:

Arthritis
Joint Diseases
Musculoskeletal Diseases

ClinicalTrials.gov processed this record on June 17, 2013

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